Issue - meetings

On a motion from Councillor Sarah Bevan, seconded by Councillor Anthony Clarke, it was unanimously

RESOLVED that

Council notes that:

• Motor Neurone Disease is a fatal, rapidly progressing disease that affects the brain and spinal cord.

• It can leave people locked in a failing body, unable to move, talk and eventually breathe.

• A person’s lifetime risk of developing MND is up to one in 300.

• It kills around 30% of people within 12 months of diagnosis, more than 50% within two years.

• It affects people from all communities

• It has no cure.

The Motor Neurone Disease Association (MNDA) has recently published a Motor Neurone Disease Charter which it is asking Local Authorities to adopt.

Council resolves to

note the charter and support its principles and seek to ensure they are met within our services, strategies and commissioning arrangements.

The Charter:

1.  People with MND have the right to an early diagnosis and information.

2.  People with MND have the right to access quality care and treatments.

3.  People with MND have the right to be treated as individuals and with dignity and respect.

4.  People with MND have the right to maximise their quality of life.

5.  Carers of people with MND have the right to be valued, respected, listened to and well supported.